Getting your Parkinson's medicines on time when you go into hospital or a care facility can be a challenge.
The Parkinson's Passport product suite gives you tools for reminding health professionals that your symptoms get worse if you don't have your medicines on time, and includes other tips for your care.
‘It’s not uncommon for someone with Parkinson’s to go into hospital for a few days, and end up staying for three weeks because their medicines were mucked around.’
Graham, man with Parkinson's
The Parkinson's Passport is a compact booklet of facts and tips about managing Parkinson’s medicines to give to health professionals and carers.
Printed copies of the passport, including the plastic card, are available to members of Parkinson's Australia (free-call 1800 644 189 to order or enquire about membership).
Use the Medicines List for people with Parkinson's to record:
- the names of all your medicines
- the dose
- times and special instructions.
It is a great way to keep track of your medicines all the time — not just when you go into hospital.
Review your list with your doctors, pharmacist and nurses regularly to make sure it is up to date, and always show it to your health professional before starting any new medicine. This can help them to review which medicines are needed and those that can be stopped, and to check for potential problems such as interactions.
The card contains only the essential information, so a busy triage nurse in emergency can quickly see:
- you have Parkinson's
- you need your medicines on time
- there are two commonly prescribed anti-nausea medicines that you should not have. These two medicines, metoclopramide (e.g. Maxolon) and prochlorperazine (e.g. Stemetil) make Parkinson's symptoms worse, and are a common cause of problems in people with Parkinson's.
The flipside of the card may be useful when you are out and about in the community, as it simply states "I have Parkinson’s" and explains a few of the symptoms that may cause you problems in public.
Keeping the card in your wallet or purse will make it easy to find in an emergency.
The card is available to members of Parkinson's Australia (free-call 1800 644 189 to order or enquire about membership).
The Parkinson's symptom management checklist reminds health professionals and carers that you need your medicines on time. It also gives tips on managing common symptoms of Parkinson’s such as swallowing difficulties and movement freezing.
As everyone's experience of Parkinson's is not the same, you can tick the symptoms that apply to you.
The Parkinson's medicines fact sheet gives useful tips on your Parkinson's medicines, such as how to avoid interactions with meals and manage nausea. It also explains why the person with Parkinson's should be allowed to self-medicate in hospital, if possible, as this can help to make sure Parkinson's medicines are taken on time.
Find out more
- What is Parkinson's disease?
- What are the symptoms of Parkinson's disease?
- What medicines are used to treat Parkinson's disease?