Living with multiple medicines

Patients and health professionals share their experience 
Living with multiple medicines

About the project

The Living with multiple medicines project is about people’s experiences of taking five or more medicines by seeing and hearing them share their personal stories on film.

Our researcher travelled around Australia to talk to 34 people (including four doctors and one pharmacist) in their own homes or workplaces. Find out what people said about:

  • how they feel about taking multiple medicines
  • communicating with others
  • problems they have with their medicines and how these are resolved.

We hope you find the information helpful and reassuring. All information about the people we spoke to is current as of the time we interviewed them.

 

An introduction by Professor Ric Day

Ric Day is Professor of Clinical Pharmacology at the University of New South Wales and St Vincent's Hospital, and a clinical pharmacologist and rheumatologist.

 

Talking points

In this study, we spoke to people who take five or more medicines, including prescription medicines, over-the-counter medicines that are purchased without a prescription (such as paracetamol) and complementary medicines (including natural and herbal medicines; alternative, traditional or holistic remedies; homeopathy; aromatherapy oils; and vitamins and minerals, which can also be part of medical treatment).

The issues raised by the people we spoke to, such as side effects, interactions between medicines, accidental overdosing, forgetting to take medicines and adapting daily routines, may also be relevant to people who are taking fewer than five medicines. However, taking multiple medicines increases the chance of experiencing side effects and interactions. 

Perceptions of taking multiple medicines

The 'business' of taking multiple medicines

Issues with taking multiple medicines

Communicating with others

Messages to others

Speech bubbles

Listen to the suggestions for others who take multiple medicines and the people who are close to them.

 

The Living with multiple medicines project was developed in collaboration with

Healthtalk Australia logo

20-29

Diana
Age at interview: 22
Number of medicines: 13
Diana's profile

 

30-39

Dipex-mia

Mia
Age at interview: 30
Number of medicines: 12

Mia's profile
Dipex-person

Karen
Age at interview: 37
Number of medicines: 8

Karen's profile
Dipex-micaela

Micaela
Age at interview: 38
Number of medicines: 21

Micaela's profile
 

40–49 years

Dipex-person

Emma
Age at interview: 41
Number of medicines: 19

Emma's profile
Dipex-niall

Niall
Age at interview: 45
Number of medicines: 7

Niall's profile
Dipex-person

PT
Age at interview: 49
Number of medicines: 7

PT's profile
 

50–59 years

Dipex-glenn

Glenn
Age at interview: 50
Number of medicines: 6

Glenn's profile
Dipex-jane

Jane
Age at interview: 53
Number of medicines: 8

Jane's profile
Dipex-linda

Linda
Age at interview: 53
Number of medicines: 5

Linda's profile
Dipex-helen

Helen
Age at interview: 58
Number of medicines: 10

Helen's profile
Dipex-russell

Russell
Age at interview: 59
Number of medicines: 15
Russell's profile

Russell's profile
 

60-69 years

Dipex-peter-s

Peter S
Age at interview: 60
Number of medicines: 18

Peter S's profile
Dipex-sue

Sue
Age at interview: 65
Number of medicines: 16

Sue's profile
Dipex-mary

Mary
Age at interview: 66
Number of medicines: 8

Mary's profile
Dipex-lyn

Lyn
Age at interview: 67
Number of medicines: 12

Lyn's profile
Dipex-jan

Jan
Age at interview: Undisclosed
Number of medicines: 15

Jan's profile
 

70–79 years

Dipex-don

Don
Age at interview: 70
Number of medicines: 5

Don's profile
Dipex-peter-m

Peter H
Age at interview: 71
Number of medicines: 5

Peter H's profile
Dipex-judy

Judy
Age at interview: 72
Number of medicines: 9

Judy's profile
Dipex-sandy

Sandy
Age at interview: 72
Number of medicines: 14

Sandy's profile
Dipex-person

Phoebe
Age at interview: 73
Number of medicines: 19

Phoebe's profile
Dipex-gordon

Gordon
Age at interview: 73
Number of medicines: 13

Gordon's profile
Dipex-lesley

Lesley
Age at interview: 74
Number of medicines: 25

Lesley's profile
Dipex-brian

Brian
Age at interview: 75
Number of medicines: 16

Brian's profile
Dipex-suzanne

Suzanne
Age at interview: 76
Number of medicines: 6

Suzanne's profile
 

80-89 years

Dipex-nancy

Nancy
Age at interview: 82
Number of medicines: 16

Nancy's profile
Dipex-dorothy

Dorothy
Age at interview: 88
Number of medicines: 11

Dorothy's profile
 

Health professionals

Dipex-brendan

Dr Brendan Beaton
Main occupation: Haemotology Registrar/Fellow
Years in clinical practice: 10
Qualifications: MBBS

Dr Beaton's profile
Dipex-susan

Dr Susan Connelly
Main occupation: Geriatrician (specialist in aged care)
Years in clinical practice: 20
Qualifications: MBBS, FRACP

Dr Connelly's profile
Dipex-elisabeth

Dr Elisabeth Wearne
Main occupation: General Practitioner
Years in clinical practice: 7
Qualifications: MBBS, FRACGP

Dr Wearne's profile
Dipex-sarah

A/Prof Sarah Hilmer
Main occupation: Clinical pharmacologist
Years in clinical practice: 16
Qualifications: BScMed (Hons), MBBS (Hons), FRACP, PhD

A/Prof Hilmer's profile
Dipex-emily

Emily Klopper
Main occupation: Pharmacist (Managing Partner)
Years in clinical practice: 10
Qualifications: BPharm MPS, Grad Dip ExSci, MEd

Emily Klopper's profile
 

The Living with multiple medicines project was developed in collaboration with

Healthtalk Australia logo

We encourage you to always speak to your health professional about your medicines — and before acting on any information you find yourself from other sources.

Health professionals such as doctors, pharmacists and nurses will usually be your best and most reliable source of information about medicines for your individual situation.

The NPS MedicineWise website also provides comprehensive information on medicines, medical tests and other health-related topics for health professionals and consumers.

 

Organisations providing education, support and information

Arthritis Australia
Provides support and education for Australians with arthritis and their carers.

Asthma Australia
Delivers high-quality support and information to people with asthma and their carers.

Beyondblue
Provides information on managing depression and anxiety. Focuses on improving the health of the whole population, with tailored approaches when working with specific population groups and in different settings – including educational settings, workplaces, health services and online.

Chronic Illness Alliance
Aims to build a better focus in health policy and health services for all people with chronic illnesses. It does this through education and research projects.

Consumers Health Forum of Australia (CHF)
Works to achieve safe, quality, timely healthcare for all Australians, supported by accessible health information and systems.

Council on the Ageing (COTA)
Promotes, improves and protects the circumstances and wellbeing of older people in Australia as citizens and consumers.

Diabetes Australia
Represents all people affected by or at risk of diabetes, their families and carers. It supports diabetes research and provides practical assistance, information and subsidised products to people with diabetes.

Diabetes NSW & ACT
Provides information, support and services to people living with and at risk of diabetes, their families, carers and friends.

Healthtalk Australia
Provides evidenced-based data on people’s experiences of health and illness that will provide information and support, and assist informed decision making.

healthtalk.org
Provides information on a range of illnesses and other health-related issues from seeing and hearing people's real-life experiences.

Kidney Health Australia
Provides a range of programs catered to the needs of people with kidney disease, their families and supporters and other groups.

Leukaemia Foundation
Provides free services to support people with leukaemia, lymphoma, myeloma and related blood disorders, and their families.

Lung Foundation Australia
Supports all aspects of lung health from asthma to cancer to COPD. It runs a toll-free information and patient support centre with a lung care nurse.

National Asthma Council Australia
Provides information and works to improve health outcomes and quality of life for people with asthma.

National Heart Foundation of Australia
Informs the public about cardiovascular disease and assists people living with the condition.

Palliative Care Australia
Represents the interests of all who share the ideal of quality care at the end of life.

Pharmaceutical Benefits Scheme (PBS)
Provides access to necessary medicines for Australians. Under the PBS, the government subsidises the cost of medicine for most medical conditions.

Prostate Cancer Foundation of Australia
Supports men and their families affected by prostate cancer through evidence-based information and resources, support groups and Prostate Cancer Specialist Nurses.

Repatriation Pharmaceutical Benefits Scheme (RPBS)
Provides a wide range of pharmaceuticals and dressings at a concession rate for the treatment of eligible veterans, war widows/widowers and their dependants.

 

Acknowledgements

This project was conducted at NPS MedicineWise using what is known as the 'DIPEx method', developed by the Health Experiences Research Group at the Department of Primary Care Health Sciences at the University of Oxford, and it was conducted with the support of Healthtalk Australia.

Researcher – Jacqueline Tudball

Jacqueline Tudball

Jacqueline worked at NPS MedicineWise until 2013 as Senior Research Officer and Acting Team Leader in the former Research and Development team. She is a social scientist and qualitative specialist. She has a PhD in public health from the University of New South Wales.

Credits

We would like to thank all those who took part in the research and shared their experiences so openly and generously.

Study guidance group

  • Dr Sally Beath, GP, Sydney
  • Alice Bhasale, Consumer Team Leader, Medicines Information, NPS MedicineWise
  • Professor Ric Day, Professor of Clinical Pharmacology, St Vincent’s Clinical School, The University of New South Wales, Sydney
  • Sue Healy, Consumer Representative
  • Professor Elizabeth Manias, Professor, Melbourne School of Health Sciences, The University of Melbourne
  • Associate Professor Kath Ryan (Chair), School of Nursing and Midwivery, La Trobe University, Melbourne
  • Vanessa Simpson, Medical Writer, NPS MedicineWise
  • Sarah Spagnardi, Manager Phone Line Services, NPS MedicineWise
  • Dr Lorraine Smith (Project Adviser), Senior Lecturer, Faculty of Pharmacy, The University of Sydney

NPS MedicineWise staff

  • Uli Eichhorn, Digital Team
  • Vanessa Simpson, Medicines Information
  • Tessa Morgan, Program Evaluation
  • Judy Raymond, Program Design
  • Margaret Williamson, Medicines Insight

External contractor

Donna Larcos, Data4Research

Organisations that assisted with recruitment

  • Australian Diabetes Council, NSW
  • Council of the Ageing (COTA) South Australia
  • Council of the Ageing (COTA) Victoria
  • Kidney Health Australia
  • Leukaemia Foundation
  • Pharmacy Express, Corrimal

We also thank colleagues and friends who assisted with recruitment.

Organisations that assisted this project

  • DIPEx Australia consortium
Monash University logo

La Trobe University logo

University of Sydney logo

  • Health Experiences Research Group, Department of Primary Care and Health Sciences, The University of Oxford

This project was approved by the Australian Commonwealth Department of Health Human Research Ethics Committee and funded by the Australian Commonwealth Department of Health.

 

The Living with multiple medicines project was developed in collaboration with

Healthtalk Australia logo